Responsibilities

• Communications Leadership and Strategy
• - Own the annual communications and marketing plan, aligned to ARC’s strategic goals.
• - Manage communications through a shared content calendar with clear ownership, timelines, prioritization processes, and cross-department planning tools (such as RACI).
• - Set priorities and recommend tradeoffs so resources focus on the highest-impact opportunities.
• - Grow communications reach, impact, infrastructure, and capabilities as ARC continues to evolve.
• Development and Fundraising Communications
• - Partner with the development team to design and execute integrated, multi-channel fundraising campaigns (e.g., annual appeals, Giving Tuesday) that convert engagement into philanthropic support.
• - Produce donor stewardship communications, impact and annual reports, and major-gift materials.
• - Advance a story-based fundraising approach that humanizes ARC’s impact and drives donor growth.
• Brand, Website, and Digital Experience

Requirements

• 7+ years of progressively responsible experience in nonprofit communications, marketing, or external relations, including direct experience supporting fundraising and donor communications.
• Experience advising senior leaders and developing thought leadership, media relations, or external communications strategy.
• Demonstrated success planning and executing integrated, multi-channel campaigns (email, social, web, print) that measurably grew engagement and/or revenue.
• Exceptional writing and editing skills, with the ability to move fluidly between emotive storytelling and clear explanation of complex or scientific content for lay audiences.
• Proven ability to evaluate and adopt emerging communications technologies, including AI-enabled tools, to improve communications planning, content development, and organizational effectiveness.
• Strong project management and executive function: prioritizing across many projects and bringing structure to cross-functional work.
• A record of hands-on execution, and experience selecting and managing external vendors, including larger scale website redesign or other major digital project.
• Fluency with communications data: comfortable defining KPIs, building dashboards, and using metrics to drive decisions.

Preferred

• Experience in a rare disease, patient advocacy, health, or scientific/medical nonprofit.
• Experience with CRM and email platforms (Salesforce experience a plus), social tools, and design tools (e.g., Canva, Adobe Creative Suite).
• Experience with brand strategy or brand architecture work.
• Experience in a small, entrepreneurial nonprofit or similarly lean, fast-paced organization where adaptability, initiative, and hands-on execution are essential.

Benefits

• Paid Time Off (PTO) : 4 weeks of vacation time, 8 days of sick leave, 10 holidays, and 2 floating holidays. Additionally, we offer PTO-Free Days during the extended holiday break from Christmas to New Year’s Day.
• Medical, Dental, Vision Insurance: Employees have access to comprehensive contributory health plans; and ARC covers 65% of individual and family medical and dental insurance premiums.
• Life and Disability Insurance: 100% employer-paid Life and AD&D coverage, along with Short-Term and Long-Term Disability insurance.
• Flexible Spending Accounts (FSA): Options for both Health and Dependent Care FSAs.
• 401(k) Retirement Plan: Up to a 4% employer match to support your financial future.
• Additional Benefits: Employee Assistance Program (EAP), Workers’ Compensation, and other resources to support your well-being.