Responsibilities

• Launch and Lead the SCD Community
• - Serve as the primary community manager for our new sickle cell disease community — a visible, credible, and trusted presence from day one
• - Set the tone for authentic, safe, and culturally fluent participation during the critical early months of launch
• - Shape discussion topics, norms, and member experiences that reflect the real and complex realities of living with SCD
• Foster Meaningful Engagement
• - Welcome new members and help create an environment where people feel comfortable participating and sharing
• - Support ambassadors and highly engaged members who help strengthen trust, connection, and belonging within the community
• - Create thoughtful prompts, polls, Q&As, educational discussions, and storytelling opportunities that encourage authentic conversation and practical peer support — covering SCD-specific topics like ER navigation, gene therapy access, fatigue, disability benefits, etc.
• Cultivate Safe And Supportive Community Experiences
• - Moderate conversations to maintain a safe, respectful, and inclusive environment

Requirements

• 3+ years of experience building and managing online communities, patient communities, peer support spaces, or highly relationship-driven digital experiences
• Strong written and verbal communication skills with the ability to foster thoughtful, supportive, member-centered experiences
• A quick, empathetic, and thoughtful approach to member interactions
• Strong emotional intelligence and the ability to navigate sensitive conversations with care and professionalism
• Experience building trust with diverse communities and fostering inclusive participation
• Comfort collaborating cross-functionally with the Product, Content, Analytics, Marketing, and Community teams

Preferred

• Deep, credible connection to the sickle cell disease community through professional work, sustained advocacy, caregiving, or lived experience
• Cultural fluency with the African American community and a nuanced understanding of the trust, stigma, and healthcare access dynamics specific to the SCD experience
• Experience in patient advocacy, public health, social work, behavioral health, caregiving, or online peer support
• Experience balancing community insights, empathy, and data-informed decision-making