Responsibilities

• Define and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels
• Develop original campaign concepts to activate and grow patient and caregiver communities
• Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones
• Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media
• Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly
• Build scalable, repeatable playbooks for community-driven growth
• Represent Probably Genetic at conferences, fundraisers, and community events, with regular travel expected

Requirements

• 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement
• A track record of building or significantly growing a community with active participation, members creating content, referring others, and organizing around the brand themselves
• Creative instincts for community activation
• Fluency in both virtual and in-person community building
• Comfort using data to guide decisions and identify what's driving growth, engagement, and CAC
• Genuine empathy for engaging a sensitive, high-stakes population
• Strong written and verbal communication; you can shape a brand's voice and adapt it to a high-trust context
• Willingness to travel regularly for events and partner meetings
• A good person. We work with some of the most marginalized populations on the planet and empathy is key
• Patient-focused and motivated to have a lasting, positive impact on humanity

Preferred

• Familiarity with the rare disease landscape or existing relationships within the rare disease community

Benefits

• An engaging and supportive team all on a mission to improve lives
• Fair and equitable compensation with competitive early-stage equity grants
• Generous Flexible Time off policy, that we actually use
• Parental Leave Benefits (12 weeks for both birthing and non-birthing)
• Hybrid, flexible work with high-trust and autonomy
• A bright, inviting, pet-friendly office in Downtown SF near transit
• Company-sponsored team lunch every Thursday
• A “work from anywhere” policy, up to 4 weeks a year
• Regular team retreats in exciting destinations
• Health Benefits including medical, dental, vision, therapy, FSA, and 401k