Responsibilities

• Strategy and Brand - Design, implement, and evaluate the NFED's annual communications plan in partnership with the executive director and the NFED staff.
• Serve as steward of the NFED's brand voice and visual identity across all channels and materials.
• Use data and analytics to measure engagement and improve results.
• Creative and Educational Content - Lead creation of engaging educational content for TikTok, YouTube, Instagram, LinkedIn, Facebook, website, and other platforms, making complex medical and research information accessible for a general audience. Own the content calendar and write, schedule, and publish social media posts, e-newsletters, and email campaigns, coordinating timelines across departments.
• Elevate the stories of individuals and families affected by ectodermal dysplasias in ways that are respectful, authentic, and inclusive.
• Foster a welcoming, responsive online community.
• Website Leadership - Lead the NFED.org website refresh, coordinating staff input, vendor selection, and implementation.
• Champion a modern, responsive, and accessible site design, and maintain standards and regular updates after launch.
• Collaboration and Project Leadership - Partner with the Executive Director and Development Coordinator to provide creative messaging and design for appeals, stewardship, sponsorships, and impact reports.
• Manage contractor priorities and deliverables, and oversee projects using Asana and Google Workspace.

Requirements

• Four or more years of experience in communications, marketing, or digital content, with a portfolio demonstrating creative work.
• Bachelor's degree in a related field, or equivalent experience.
• Experience managing contractors, vendors, or staff.
• Excellent writing, editing, and storytelling skills, especially in communicating medical or scientific information to general audiences.
• Hands-on experience with social media scheduling and email marketing.
• Ability to manage a budget relevant to communications projects.
• Demonstrated experience creating short-form video and social media content.
• Familiarity with AI tools (such as Claude, ChatGPT, or Gemini) and curiosity about using them responsibly.
• Experience with website redesign, SEO, GEO, or accessibility standards.
• Creative, organized, collaborative, and ability to thrive in a remote workplace.

Preferred

• Proficiency with Microsoft 365, Google Workspace, Asana, Canva, and WordPress desirable.

Benefits

• Salary: $80,000, plus health benefit stipend, FSA, employee matching IRA, and paid vacation