Responsibilities

• Partner with the Director, Marketing Strategy, to develop and execute an integrated patient and caregiver marketing strategy, including branded promotion, grounded in patient insights, behavioral science, advocacy partnerships, and launch-readiness priorities.
• Develop patient content, unbranded and branded campaigns, educational resources, community programs, support tools, and digital experiences that are insight-led, compliant, inclusive, and aligned to brand and disease-state strategy.
• Develop patient and caregiver disease-state education strategy to increase understanding of FSHD progression, diagnosis, genetic confirmation, care coordination, and the importance of staying connected to appropriate specialist care.
• Lead patient journey mapping, segmentation, behavioral strategy, and patient/caregiver jobs-to-be-done to identify priority barriers, moments of influence, and activation opportunities across the FSHD journey.
• Partner with advocacy organizations, patient communities, caregivers, and key community stakeholders to build trusted, compliant, and meaningful engagement that informs strategy and strengthens the FSHD ecosystem.
• Build patient activation, retention, and engagement programs that support patient re-engagement, informed conversations with healthcare providers, specialist connection, and treatment-readiness behaviors.
• Identify patient, caregiver, and system-level barriers to diagnosis, genetic confirmation, treatment adoption, access, and ongoing engagement; translate insights into clear action plans and measurable interventions.
• Collaborate closely with Patient Services, Patient Advocacy, Market Access, Medical Affairs, Communications, Legal, Regulatory, Compliance, Customer Experience, Insights & Analytics, Field, and agency partners to ensure coordinated execution.
• Define patient marketing priorities, budget needs, agency scope, launch milestones, KPIs, and optimization plans to measure belief shift, engagement, reactivation, diagnosis/genetic confirmation progress, and launch readiness.
• This position will require up to 20% travel as defined by the business (domestic and/or international).

Requirements

• Bachelor’s degree in related field.
• Minimum of 5 years of experience in commercial marketing with either rare disease, specialty, neurology, neuromuscular, genetic testing, or complex chronic condition patient marketing experience.
• Minimum of 3 years of demonstrated experience of leveraging data, analytics, and customer insights to drive personalization at scale.
• Strong cross-functional leadership and ability to collaborate effectively with various stakeholders and teams including Product, Communications, Legal, Regulatory, Compliance and Global.
• Experience developing patient and caregiver disease-state education, unbranded and branded patient campaigns, support programs, or community engagement strategies.
• Demonstrated experience partnering with patient advocacy organizations, patient communities, caregivers, and external stakeholders in a compliant, patient-centered way.
• Experience with patient journey optimization, behavioral insight generation, segmentation, digital engagement, CRM, social/community listening, or omnichannel patient activation.
• Pre-launch and launch experience, including market shaping, patient activation, treatment-readiness planning, and cross-functional launch execution.

Preferred

• Master of Science and/or MBA
• Multi-functional experience in pharmaceutical or healthcare